Publications

Tom Obengo & Jantina de Vries, (2024). Setting Research Priorities
Bull, S. (2024). Research Ethics in Epidemics and Pandemics: A Casebook. Springer Nature.
Matisonn, H., de Vries, J., & Hoare, J. (2023). Capturing Moral Distress as a Global Phenomenon in Healthcare. The American Journal of Bioethics, 23(4), 82-84.
Ralefala, D., Kasule, M., Matshabane, O. P., Wonkam, A., Matshaba, M., & de Vries, J. (2023). Participant views on practical considerations for feedback of individual genetic research results: a case study from Botswana. Global Bioethics, 34(1), 1-14.
de Vries, J., & Pratt, B. (2023). Epistemic justice in bioethics: interculturality and the possibility of reparations. Journal of Medical Ethics, 49(5), 347-347.
Rahimzadeh, V., Ambe, J., & de Vries, J. (2023). Enhancing Reciprocity, Equity and Quality of Ethics Review for Multisite Research During Public Health Crises: The Experience of the COVID-19 Clinical Research Coalition Ethics Working Group. Journal of Law
Matshabane, O. P., Appelbaum, P. S., Faure, M. C., Marshall, P. A., Stein, D. J., de Vries, J., & Campbell, M. M. (2023). Lessons learned from the translation of the Internalised Stigma of Mental Illness (ISMI) scale into isiXhosa for use with South Afric
Ewuoso, C., Cordeiro‐Rodrigues, L., Wonkam, A., & de Vries, J. (2023). Addressing exploitation and inequities in open science: A relational perspective. Developing World Bioethics, 23, 331–343.
Obengo, T., & de Vries, J. (2024). Setting Research Priorities. In Research Ethics in Epidemics and Pandemics: A Casebook (pp. 23-40). Cham: Springer International Publishing.
Musvipwa, Faith & Wonkam, Ambroise & Berkman, Benjamin & Vries, Jantina. (2024). Perspectives of researchers, science policy makers and research ethics committee members on the feedback of individual genetic research findings in African genomics research.
Matshabane, Olivia & Ewuoso, Cornelius & Vries, Jantina. (2024). Genetic Attribution, Moral Agency, and Moral Responsibility from the Perspective of an African Philosophy.
Pratt, B. (2023). How Should Urban Climate Change Planning Advance Social Justice?. Kennedy Institute of Ethics Journal, 33(1), 55-89.
Pratt B. Defending and Defining Environmental Responsibilities for the Health Research Sector. Sci Eng Ethics. 2024 Jun 6;30(3):25.
Millum, J. (2024). Ethics and health research priority setting: a narrative review. Wellcome Open Research, 9, 203.
Pratt, B. (2023). A multidimensional account of social justice for global health research. Bioethics.
de Vries, J., & Pratt, B. (2023). Epistemic justice in bioethics: interculturality and the possibility of reparations. Journal of Medical Ethics, 49(5), 347-347.
J Borthwick, N Evertsz, B Pratt (2023. How should communities be meaningfully engaged (if at all) when setting priorities for biomedical research? Perspectives from the biomedical research community. BMC Medical Ethics 24 (1), 6, 2023
Evertsz, N., Bull, S., & Pratt, B. (2023). What constitutes equitable data sharing in global health research? A scoping review of the literature on low-income and middle-income country stakeholders’ perspectives. BMJ Global Health, 8(3), e010157.
Kritzinger, S., Pfaff, K., Barta, J., Bernhard, J., Boomgaarden, H., Eder, A., ... & Tschiatschek, S. (2023). Digitize!–Computational Social Science in der digitalen und sozialen Transformation. Zeitschrift für Hochschulentwicklung, 18(Sonderheft Forschun
Green, S., Prainsack, B., & Sabatello, M. (2024). The roots of (in) equity in precision medicine: gaps in the discourse. Personalized Medicine, 21(1), 5-9.
Longato, F. (2024). Autonomia e solidarietà. Per un approccio relazionale. SISTEMI DI WELFARE, 2, 39-50.
Fiske, A., Radhuber, I. M., Salvador, C. F., Araújo, E. R., Jasser, M., Saxinger, G., ... & Prainsack, B. (2024). Don’t waste the crisis: The COVID-19 Anthropause as an experiment for rethinking human–environment relations. Environment and Planning E: Nat
Modelhart, Antonia & Sturz, Dominique & Kremslehner, Lydia & Prainsack, Barbara. (2024). Lived experiences of genetic diagnosis for rare disease patients: a qualitative interview study. Orphanet Journal of Rare Diseases. 19. 10.1186/s13023-024-03058-4.
Prainsack, Barbara & Forgo, Nikolaus. (2024). New AI regulation in the EU seeks to reduce risk without assessing public benefit. Nature Medicine. 10.1038/s41591-024-02874-2.
Geiger S, Prainsack B, Wagenaar H. The WHO Pandemic Agreement should be more specific about when and how to enable global access to technology. Health Policy. 2024 Jun 8;146:105112.
Pot, M., & Prainsack, B. (2024). Governing AI technologies in healthcare: beyond the'ethics bubble'. In Handbook on Public Policy and Artificial Intelligence (pp. 411-422). Edward Elgar Publishing.
Biller-Andorno, Nikola & Patrão Neves, Maria & Laukyte, Migle & Łuków, Paweł & Mallia, Pierre & Molnar-Gabor, F. & Murphy, & Nys, Herman 6& Palazzani, & Prainsack, & Sahlin, & 6Sharon, & van den hoven, & Ve. Defending democracy in Europe.
Strohmeier, Hannah & Karunakara, Unni & Panter-Brick, Catherine. (2024). Public discourse narratives: from 'Secret Aid Worker' discontent to shifting power in humanitarian systems. Disasters.
The Lancet Countdown on Health and Climate Change: Informe de recomendaciones políticas de Costa Rica (2022)
Miranda Chacón, Z., Alfaro Martínez, E. J., Hidalgo León, H. G., Arguedas Ramírez, G., & Rivera Chavarría, A. L. The Lancet Countdown on Health and Climate Change: Informe de recomendaciones políticas de Costa Rica (2022).
Arguedas-Ramirez, G. (2023). A Decolonial Critique to the Spheres of Morality in the Medical Profession. The American Journal of Bioethics, 23(12), 62-65.
Arguedas-Ramírez, Gabriela. (2023). One. The Twenty-First-Century Crusade against Democracy in Latin America: ‘Gender Ideology’ at the Frontline. 10.1515/9781399505413-004.
Arguedas-Ramírez, Gabriela & Wenner, Danielle. (2023). Reproductive Justice Beyond Borders: Global Feminist Solidarity in the Post-Roe Era. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics. 51. 606-611.
Gender Ideology, Refeudalization, and the Reproductive Reconquista: A (G)local Perspective. 2024. Gabriela Arguedas-Ramírez
Limenih, G., & Nouvet, E. (2024). The Uptake of Critical Perspectives in the Field of Global Mental Health: A Critical Interpretive Synthesis. medRxiv, 2024-01.
Limenih G, MacDougall A, Wedlake M, Nouvet E. (2024) Depression and Global Mental Health in the Global South: A Critical Analysis of Policy and Discourse. Int J Soc Determinants Health Health Serv. Analyzing Policy Responses to Mental Health, Vol. 54(2) 9
Williams, Iestyn & Kapiriri, Lydia & Velez, Marcela & Aguilera, Bernardo & Danis, Marion & Essue, Beverley & Goold, Susan & Noorulhuda, Mariam & Nouvet, Elysée & Razavi, Donya & Sandman, Lars. (2024). How did European countries set health priorities in re
de Laat, S., Musoni, E. R., Bezanson, K., Yantzi, R., Wahoush, O., Nouvet, E., ... & Schwartz, L. (2024). They do their utmost: promise and limits of palliative care in two refugee camps in Rwanda, a qualitative study. Medicine, Conflict and Survival, 1-2
Ndu, M., Teachman, G., Martin, J., & Nouvet, E. (2024). “We Live Our Life Normal”: A Qualitative Analysis of Nigerian Women’s Health-Seeking Behavior during the COVID-19 Pandemic. International Journal of Environmental Research and Public Health, 21(3), 2
Aguilera, B., Vélez, C. M., Kapiriri, L., Abelson, J., Nouvet, E., Danis, M., ... & Noorulhuda, M. (2024). Stakeholder participation in the COVID-19 pandemic preparedness and response plans: A synthesis of findings from 70 countries. Health Policy, 105013
Essue, B. M., Kapiriri, L., Mohamud, M. H., Vélez, C. M., Nouvet, E., Aguilera, B., ... & Kiwanuka, S. (2024). Priority setting in times of crises: an analysis of priority setting for the COVID-19 response in the Western Pacific Region. Health Policy, 105
Williams, I., Kapiriri, L., Vélez, C. M., Aguilera, B., Danis, M., Essue, B., ... & Sandman, L. (2024). How did European countries set health priorities in response to the COVID-19 threat? A comparative document analysis of 24 pandemic preparedness plans
Ndu, Mary & Teachman, Gail & Martin, Janet & Nouvet, Elysée. (2024). “It’s what we perceive as different”: an interpretative phenomenological analysis of Nigerian women’s characterization of their health during the COVID-19 pandemic. BMC Women's Health.
Kapiriri, L., Vélez, C. M., Aguilera, B., Essue, B. M., Nouvet, E., s Donya, R., ... & Suzanne, K. (2024). A global comparative analysis of the the inclusion of priority setting in national COVID-19 pandemic plans: A reflection on the methods and the acce
Elit, L., Tum, E. M., Ngalla, C., Fungchwi, G. M., Domgue, J. F., & Nouvet, E. (2023). Perceptions of Cancer in Parents of Adolescent Daughters in Northwest Cameroon. Current Oncology, 30(8), 7167–7177. MDPI AG.
Strobeyko, Adam & Atuire, Caesar & Faden, et al. (2024). Equitable access to pandemic products demands stronger public governance. The Lancet.
Nancy S Jecker; Caesar Alimsinya Atuire; Jean-Christophe Bélisle-Pipon; Vardit Ravitsky; Anita Ho. (2024) Stoking fears of AI X-Risk (while forgetting justice here and now)
Jecker, Nancy S. & Atuire, Caesar A. (forthcoming). Personhood: An emergent view from Africa and the West. Developing World Bioethics.
Jecker NS. and Atuire Caesar., (2024), Authors meet critics: What is a person? Untapped insights from Africa.. Journal of medical ethics
de Campos-Rudinsky TC., Bosha SL., Wainstock D., Sekalala S., Venkatapuram S., Atuire CA. (2024). Decolonising global health: why the new Pandemic Agreement should have included the principle of subsidiarity.
Shaw, J., Ali, J., Atuire, C. A., Cheah, P. Y., Español, A. G., Gichoya, J. W., ... & Vayena, E. (2024). Research ethics and artificial intelligence for global health: perspectives from the global forum on bioethics in research. BMC Medical Ethics, 25(1),
Atuire CA., Jecker SN., Belisle-Pipon J-C., et al. (2023), AI and the falling sky: interogating X-Risk. J Med Ethics .
N. S. Jecker, J. Savulescu, A. Caplan, A. Capron, J. McMillan, M. Ghaly, G. O. Millán, C. Atuire, J. McMahan, V. Teck Chuan, J. Bélisle-Pipon, V. Viswani & V. Ravitsky (2024) Bioethics’ Duty to Conference in Qatar: Reply to Magnus, The A J of Bioethics.
Nancy S. Jecker & Caesar A. Atuire (2024) Personhood Beyond the West, The American Journal of Bioethics, 24:1, 59-62,
Nancy S. Jecker, Vardit Ravitsky, Mohammad Ghaly, Jean-Christophe Bélisle-Pipon & Caesar Atuire (2023) Proposed Principles for International Bioethics Conferencing: Anti-Discriminatory, Global, and Inclusive, The American Journal of Bioethics,
Schaefer, G. & Emanuel, Ezekiel & Atuire, Caesar & Leland, RJ & Persad, Govind & Richardson, Henry & Saenz, Carla. (2023). Equitable Global Allocation of Monkeypox Vaccines. SSRN Electronic Journal.
Atuire, Caesar. (2023). Some barriers to knowledge from the global south: commentary to Pratt and de Vries. Journal of Medical Ethics. 49. jme-2023.
Atuire, Caesar & Hassoun, Nicole. (2023). Rethinking solidarity towards equity in global health: African views. International Journal for Equity in Health. 22.
Key Global Bioethics Guidelines Get Dramatic Update
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